Marfan's Syndrome

**TheRuss** · Posted On: 12/25/2008 7:25pm

You should go start a thread in Newbietown anyways. It's kind of the thing to do.

**pingafogo** · Posted On: 12/25/2008 8:21pm

Done. I have introduced myself.

**NJM** · Posted On: 12/26/2008 12:42pm

I know a fellow who did pretty hard ke?po who has this syndrome.

Didn't stop because of it either.

Take care of yourself and remember that you're no different than you were before you were diagnosed.

**TheRuss** · Posted On: 12/26/2008 12:43pm

Originally Posted by NJM

Take care of yourself and remember that you're no different than you were before you were diagnosed.

If you're treating it and said treatment is effective in stopping its advance, that is.

**pingafogo** · Posted On: 12/26/2008 11:50pm

Originally Posted by NJM

I know a fellow who did pretty hard ke?po who has this syndrome.

Didn't stop because of it either.

Take care of yourself and remember that you're no different than you were before you were diagnosed.

That is, someone whose aorta is dilating rapidly and could burst open at any moment. Maybe. You don't know unless you're getting echocardiograms on a regular basis. Just because you've been fine so far does not mean you will continue to be, in this particular disease. You can die very suddenly if untreated. Unfortunately many people with Marfan's are not diagnosed until the autopsy.
But scariness aside, if you see a cardiologist regularly, follow their advice, and your aorta is not getting any bigger... its probably fine to train.