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  1. TheRuss is offline
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    is badder than you

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    Posted On:
    11/07/2008 11:40am

    Join us... or die
     Style: None

    --
    Hell yeah! Hell no!
    Quote Originally Posted by ijay
    What the ****? His doctor told him not to excersice or he dies, and you guys tell him to continue as nothing is wrong?
    No, I didn't. You didn't actually read my posts.

    I told him:
    1) Find a specialist/specialists who can assess what athletics he can participate in based on his specific symptoms.
    2) Look into treatment options that may be able to stop those specific symptoms from getting any worse.

    If he can get cleared to participate (#1), and if he can prevent the relevant symptoms from worsening (#2), then it follows that he'll be able to continue in the given athletic activities over the long term.

    Seriously, next time you decide to tell someone off, get your facts straight first.
    Quote Originally Posted by Emevas View Post
    Downstreet on the flip-flop, timepants.
  2. Jack Rusher is offline
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    Senior Member

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    Posted On:
    11/07/2008 1:04pm


     Style: ti da shuai na

    --
    Hell yeah! Hell no!
    Quote Originally Posted by jnp
    Sports medicine doctors usually have a much better understanding of an athlete's capabilities/limitations.
    ++. Hopefully you'll get cleared for a range of activities that you enjoy. In the meantime, maybe capoeira? It's fun, there's no hitting, plus lots of hot girls in tight white trousers. :smile:
    “Most people do not do, but take refuge in theory and talk, thinking that they will become good in this way” -- Aristotle, Nicomachean Ethics, II.4
  3. E-Van is offline
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    Senior Member

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    Posted On:
    11/07/2008 1:13pm


     Style: bjj

    --
    Hell yeah! Hell no!
    Quote Originally Posted by jackrusher
    ++. Hopefully you'll get cleared for a range of activities that you enjoy. In the meantime, maybe capoeira? It's fun, there's no hitting, plus lots of hot girls in tight white trousers. :smile:
    I think that could cure anything.
  4. ijay is offline

    Featherweight

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    Posted On:
    11/07/2008 2:26pm

    Bullshido Newbie
     Style: no-gi BJJ

    --
    Hell yeah! Hell no!
    Quote Originally Posted by TheRuss
    No, I didn't. You didn't actually read my posts.

    I told him:
    1) Find a specialist/specialists who can assess what athletics he can participate in based on his specific symptoms.
    2) Look into treatment options that may be able to stop those specific symptoms from getting any worse.

    If he can get cleared to participate (#1), and if he can prevent the relevant symptoms from worsening (#2), then it follows that he'll be able to continue in the given athletic activities over the long term.

    Seriously, next time you decide to tell someone off, get your facts straight first.
    Well, yeah, I guess my post was directed more to the other guy than you, I probably shouldn't have quoted you. And yes, I agree with you, if doctor clears him then it's ok for him to do martial arts/whatever. But until then he should take it easy.
  5. Breakfast Fox is offline

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    Posted On:
    12/15/2008 3:21pm


     Style: Judo

    --
    Hell yeah! Hell no!
    I know I'm necroing a thread, but it's interesting to see other people with Marfans who are in MA. I've been diagnosed since age 12, but honestly it hasn't stopped me. I'm keeping close tabs on my aortic dilation (checkups every year), but I'm still training as much as my schedule allows. As I've told other people, it's a quality of life thing - I'll start throttling back on the MA when I hit the 30s or 40s. I've trained in mainly Judo and Boxing, and have been working on my distance running off and on. I'm 6'1", 145 pounds.

    I've met quite a few doctors who don't know crap about Marfans. Pick your specialists well - be sure to find an actual specialist, not a Cardiologist who took a 2-day class on connective tissue disorders. Don't just consult with the doctors, but do your own research. Because of my personal research, I'm currently on Losartan, which is looking fairly promising. Get a good index on what your body is doing, and don't push things too hard. The only reason I'm continuing with Judo is because my aorta has been staying steady at 3.8 cm for the last four years. However, like others have mentioned, this is a variable expression disease. My uncle died at age 35 from it, and his daughter recently had an aortic dissection (where one or more layers of the aorta splits) from subclavian level down to ankle level. She's 27. Use your judgement wisely, you may have to pull the old man card and tone down the athletics.

    Good luck, and I hope you strike that balance that we all have to find. Maybe we can have a Tai Chi Marfan support group, and we can meet in parks to beat each other up in slow motion. ;)

    This might be a handy forum if you want to chat with others with Marfans:
    http://www.marfanlife.net/bb3/
    Last edited by Breakfast Fox; 12/15/2008 3:39pm at .
  6. acidcrakker is offline

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    Posted On:
    12/15/2008 9:53pm

    Bullshido Newbie
     Style: Wing-Chun/ Maui Tai

    --
    Hell yeah! Hell no!
    Man this is a ruff thing to deal with. I am sorry for you. I depend daily on training. I dont know what I would do if I didnt get my daily supply of endorphins.

    But I will say this. If it can put your life in danger, maybe you should find something a little less strenous. Or you could become one of those people who fought the diesease and won.

    IE. Magic Johnson- AIDs
    Joe Domagio- that thing with his foot
    Forest Gump- his leg crutches.

    Lol, seriously, if you can find something that makes you happy in life do it, as long as it doesnt kill you.
  7. FLMKane is offline

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    Posted On:
    12/16/2008 3:11am


     Style: Kyokushin

    --
    Hell yeah! Hell no!
    If you can afford it maybe you could find a doctor who knows something about dealing with athletes and their health.
  8. pingafogo is offline

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    Posted On:
    12/25/2008 7:20pm

    Bullshido Newbie
     Style: Capoeira

    --
    Hell yeah! Hell no!
    Quote Originally Posted by Jack Skellington
    ++. Hopefully you'll get cleared for a range of activities that you enjoy. In the meantime, maybe capoeira? It's fun, there's no hitting, plus lots of hot girls in tight white trousers. :smile:
    Clearly you do not do capoeira. No hitting? Are you kidding? Listen, I'm one of those hot (and dangerous) girls in the white pants, and I hit people quite often. Perhaps the misconception comes from the fact that a capoeirista would rather get out of the way of a blow than block it with part of their body. And we are quite good at getting out of the way, that's what all the acrobatics are for... not for showing off like some novices seem to think.

    But I'm posting here because it is increasingly looking like I have Marfan's as well. I haven't been officially diagnosed, but when I go back to the doctor after Christmas I expect I will be. Frankly, I'm devastated by the idea of giving up training. Capoeira, at least the style I practice, is VERY physically demanding. On one hand, I don't want to drop dead one day before I even get to 30. On the other hand, it hasn't happened yet (I know, emphasis on yet). And I just cannot picture my life without capoeira. Part of me says I'd rather live a full but short life than a long one where I can never let my heart rate get too high. I mean, seriously, I'd even have to stop dancing samba.
    So I really do feel for you, I'm going through the same thing. I have a friend that I train with who is a doctor, and right now I'm appreciating him more than ever, because he not only understands what capoeira is like physically, but also why its so hard to stop.

    Good Luck.
    Pinga Fogo
  9. TheRuss is offline
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    is badder than you

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    Posted On:
    12/25/2008 7:40pm

    Join us... or die
     Style: None

    --
    Hell yeah! Hell no!
    Quote Originally Posted by pingafogo
    Clearly you do not do capoeira. No hitting? Are you kidding? Listen, I'm one of those hot (and dangerous) girls in the white pants, and I hit people quite often. Perhaps the misconception comes from the fact that a capoeirista would rather get out of the way of a blow than block it with part of their body. And we are quite good at getting out of the way, that's what all the acrobatics are for... not for showing off like some novices seem to think.
    This belongs in a different thread. Maybe you should start one in Newbietown?
    Quote Originally Posted by Emevas View Post
    Downstreet on the flip-flop, timepants.
  10. pingafogo is offline

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    Posted On:
    12/25/2008 8:21pm

    Bullshido Newbie
     Style: Capoeira

    --
    Hell yeah! Hell no!
    Quote Originally Posted by H TO THE IZZO
    This belongs in a different thread. Maybe you should start one in Newbietown?
    If that was the whole purpose of my post, I would have put it elsewhere. But I came to this thread because I was specifically interested in training martial arts with Marfan. I'm pretty sure this is the right thread for that. Sorry that my aside was off topic... Besides, if this guy started doing capoeira because someone told him it wouldn't be a problem for his heart, it could get him in a lot of trouble.
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