Over the past month I've been diagnosed with this particular syndrome which has effectively put a halt to my MA training, indefinitely.
Here's the tl:dr version: I am curious if anyone out there has it, or knows someone with it. Because I want to stay in shape but according to my doctor, whom I'm convinced knows nothing of this syndrome nor martial arts, that all the stuff I used to do to keep in shape: Running, Weight training, wrestling, martial arts, basketball, football, swimming, are a big no no. More importantly, do you know anyone with it that does a martial art, and WHICH martial art?
I know this is weird but martial arts and sports have been such a big part of my life for so long that, now that it's gone I am kind of at a complete loss, and any input would be appreciated from my fellow bullies.
Here's the detailed version: feel free to skim or bypass entirely.
My Stats 24 years old, 5'11/6'0, 180 lbs, perfect vitals with a slightly lower heart rate than usual about 50 or so.
The Diagnosis I have had constant chest pains for the last six weeks, about two weeks in I was wrestling with my nephew and his friends and started having severe chest pains, I thought maybe a heart attack so I went to the ER. They took chest x-rays, CT scans, MRI's, sonar, the whole works and saw I had an indented chest, mild scoliosis, incredible flexibility, insane reach, poor vision, angina etc.. and sent me to several specialist who over the course of two days diagnosed me with Marfan's Syndrome.
The Prognosis My doctor who is a fat man, and hates the idea of martial arts. Recommended I take up golf or bowling.(I almost punched him)
I cannot do anything that would get close to maxing out my heart rate because it could rupture my aorta and cause instant death, (just add water.) Maybe I'm being bullheaded, but this is stupid to me, because before I found out I had this I maxed out my heart rate 6 days a week for 11 years and never once died. (Not even a single time!)
I cannot be punched in the head or the chest. A punch to the head could cause my lenses to become loose causing permanent blindness. A punch to the chest could cause my heart to explode, or something (can't remember exactly.) Which again, I've been punched in the head and chest so many times it's ridiculous and I can still see and breath.
The Disease The disease means the connective tissue in my body is extremely weak. It's a disorder that lasts your whole life and existed since you were born. Which since I've had the same doctor damn near my whole life and he didn't even catch this glaring fact makes me lose even more faith in him. Anyway, if anyone would be willing to give me some advice or just an opinion on this I'd really appreciate it.